Everything I Tell You is Hearsay

This week started out with such promise, then came the descent.

Oscar went rogue in a way that required a more-than-customary degree of medical intervention. 3 days into this hospital stay, I still have no definitive plan for the immediate future. It’s clear I’ll need surgery, but not precisely when, where, or to what extent the procedure will reach.

Double Dose of Dahlias

As ever, there are several considerations at play which impact my course of treatment; my recurring flares have not responded to the biologic intervention and are currently only quelled with steroids. This is problematic because apart from making me feel awful in a whole host of ways, steroids have a raft of nasty side effects [high blood pressure, bone loss, impaired endocrine function] rendering them untenable as a long term treatment. Moreover due to their tendency to cause excessive bleeding problems and delay healing substantially they are troublesome in terms of surgical intercession.

There’s a lot of uncertainty around how to proceed, and coupled with the fact that I Am Not A Patient Man, I also find it difficult to maintain my emotional equilibrium in the face of ongoing ambiguity. Plus, I might have to get a doo doo bag. For THREE MONTHS.

I feel very fortunate to have a supportive group of people taking as much care of me as I will let them. I’ve had well-wishers, and foot rubbers. Clothes-bringers and entertainment providers. Flowers and conversation have arrived at beneficial intervals, and I am moved again at the generosity of my selected family and friends.

I have also had a compassionate troop of caregivers here at Providence who have only reinforced my admiration for this health system where I am fortunate enough to work; to underscore that it is well-founded and grows by degrees. Their obvious interest in my physical well-being is complemented by an equally apparent desire to comfort me emotionally. Lastly there is a manifest willingness to patiently communicate with me about my concerns and questions that lacks any hint of exasperation or condescension that stays in O(ther) (H)ospitals (S)adly (U)pheld*

I’m trying to keep busy and positive, and to rest as much as I can. I am hoping that though this week took a dive, I’ll rebound like the little rubber bouncy ball I really am inside. A swirly purple glitter one.

*That was a stretch, but I am on morphine, so it’ll have to do.